Friday, February 5, 2010
Ever since we found out our little Michael had what is called Ebstein's Anomaly I have searched the internet high and low for information on the condition. It is such a rare heart condition that there isn't much information out there about it and not even our doctor at Primary Children's could tell us much about how or why Michael had it.
We only knew the name of Michael's heart condition for less than a week before we lost him. This meant that I didn't have a whole lot of time to research before being thrown into the most heart wrenching experience of my life. It wasn't until several weeks later that I remembered a site that I had found during that week of researching.
The site I had came across was for the Ebstein's Anomaly Foundation, a foundation who says:
"We will accomplish our goals by funding research to advance the diagnosis, treatment and prevention of this rare congenital defect. Each year, we fund the most promising research under the direction of our Advisory Board. Our advisor will be doctors and institutions who are dealing with Ebstein's cases as well as other congenital heart defects on a daily bases."
I wanted to donate every last penny of my savings toward this foundation to provide more hope for Ebstein's patients in the future. Unfortunately, medical bills from Primary Children's, the hospital where Michael was delivered, the doctor and the echocardiograms were arriving in piles. So, I had to get creative on how to help this foundation.
I came up with the idea of creating one of my premade templates and dedicating it to my sweet Michael. Each time Michael's Big Heart Template is purchased, 100% of the earnings will go towards the Ebstein's Anomaly Foundation.
Also, for the month of February (since it is the month for hearts), 20% of all premade template orders will go towards the foundation.
You can purchase the template here.
If you would rather just donate to the foundation than purchase the template, you can do so here.